Frustration

Last night our second opinion confirmed that we are a "severe" case of TTTS (stage 2)and that we are candidates for the laser separation surgery. UCLA recommended that we go to Dr. Quintaro in Tampa Florida "yesterday". This morning we woke up and tried to contact Dr. Quintaro on our way to the airport to catch the first flight out. After speaking to countless unconcerned Florida hospital staff, and after the cancellation of the flight for mechanical reasons, we finally discovered that Dr. Quintaro is out of the country until September 7th. Too long. There are only two known specialist in the States for this surgery, so we are now waiting at home for a call from Dr. DeLia in Milwaukee. We spoke with him yesterday and were impressed with his personal interest in us, so we are hopeful he will call us very soon. Likely, we will fly there today regardless of if when he calls. We feel the need to be there and ready to match his schedule. Thanks Skywest!

While it feels that nothing can happen fast enough, and that it just is not working like we want it to, we simply do not know that it isn't working perfectly in God's eyes. We know that God knows "yesterday" what time Dr. De Lia will call us today. He knows where we will be in 3 hours, 3 days, 3 years. He knows our boys' names. As we do what we can, we rely on
Him for what we can't. We also rely on all of your continuing, faithful prayers.

Here's the science for those who care to follow along with the medical stuff.

Donor: weight 160 grams, 0 amnionic fluid depth, no bladder visible. (does not mean he doesn't have one but that it is not filling at this time. It is an indicator for the stage of TTTS but is not a defect - in fact, it is one of the criteria that qualifies us for the laser surgery).

Recipient: weight 260 grams, 8.4 cm amniotic fluid depth, bladder visible, no thickening of heart muscle visible (which means that he is not too overworked yet, it is good).

Both: No signs of damage or defect. Our boys are healthy now but their food distribution isn't, Which is why we want surgery NOW.

Next update hopefully from Milwaukee.